Food For Thought: Nutrition & Caring
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In this section:
Short Breaks: Informal Networks Care at Home Care Away from the Home Financial Help to Take a Break
Leisure: Access Music, Arts and Sport Social Events Activities For Children and Young People
Your caring role may not allow for much free time and your wellbeing may be affected as a result. Taking a regular break – whether for a few hours or even longer – may help reduce stress and anxiety and can be just as refreshing for the person you care for as well as it is for you. Remember that going out to meet a friend for a coffee is just as valid a reason to have a break as going to a doctor’s appointment or doing the shopping. Leisure time is important too, whether you do something with the person you care for, or separately. There are a number of schemes and services that can make this easier.
You may have relatives, friends or neighbours who could help out from time to time. It can be hard to ask for help, but other people may not realise that you would appreciate their support unless you ask them. If you can be specific about what you need then those around you may be all too willing to help. If you are part of a carers group you may find others who are looking after someone with a similar disability or of a similar age and they are likely to have a good understanding of the issues you are facing. You could help each other to take a break by offering a lift share to an activity, or babysitting so that you can go out. If you do not feel that you could leave the person you care for with someone else, a friend coming to your home for just a couple of hours could enable you to have a sleep, or catch up on things around the house.
Home care, also known as domiciliary care, is when a trained care worker comes to the home during the day, evening or overnight to carry out some of the tasks that you would normally do. You can pay for home care privately. Croydon Council has contracts with homecare agencies who are monitored and reviewed regularly. Contact Social Services for Adults on 020 8726 6500 for a copy of the Approved Home Care Agencies list.
You can also ask Croydon Social Services to organise home care on your behalf or to give you a direct payment to make your own arrangements. The person you care for will need to meet the criteria for assistance and will need to be assessed - see Social Services for more information about assessments.
Croydon Neighbourhood Care Association (020 8662 1000, www.cnca.org.uk) has neighbourhood groups all over the borough. Some of these have volunteers who can provide a sitting service, where someone comes to the home for a few hours to be with the person you care for while you go out.
Community Service Volunteers (020 7278 6601, www.csv.org.uk) can help the person you care for to live independently by living with them and providing any assistance that is required. Travelling expenses, pocket money and meals must be provided. Direct Payments can be used to pay these fees. Volunteers will generally stay for a minimum of four months and a maximum of a year.
There are groups that support carers from black and minority ethnic (BME) communities that provide culturally specific short break schemes. You can read about these in our factsheet BME Carers.
An alternative to another person coming into the home is to use a scheme where the person you care for spends part of the day elsewhere at either a day care centre, day service or an older people’s lunch club. As well as giving you a break, this will give the person you care for the opportunity to socialise and take part in activities. Such services are run by Social Services for Adults (020 8726 6500) and the person you care for will need to meet the criteria for assistance and be assessed, see Social Services.
There are day services provided by voluntary organisations, such as Croydon Mencap (020 8684 5890, www.croydon.cswebsites.org), which supports people with a learning disability and Mind in Croydon (020 8668 2210, www.mindincroydon.org.uk), which supports people with a mental health problem. See Information for more details about these and other specific condition groups, or see our Specific Conditions factsheet.
Children with disabilities can use a variety of social services schemes including Calleydown Residential Centre; a Saturday club; holiday activity schemes; or they can go to a care worker’s own house for a few hours or even an overnight stay. All of these services are only available to children who have been assessed by the Children with Disabilities Team - see Social Services for more information about accessing these services. The Croydon Childminding Network (020 8604 7586) maintains a list of specialist childminders in the borough who look after children in their own home (not the child’s) and who have experience and skills relating to the care of disabled children.
If you are on a low income you may be able to get funding from the Respite Association (01406 373 163, www.respiteassociation.org) to pay for a short break. There are a number of grant-giving organisations that may also be able to fund a break - see our factsheets Grants and Holidays for more details.
Information about local organisations, events and activities for carers can be found in our free newsletter, Carers News, and in our monthly e-bulletin, as well as on our website, www.carersinfo.org.uk. Joining our postal and electronic mailing list ensures that you will be up to date with everything that is happening for carers in the borough. Leisure Link (020 8239 4397, www.croydononline.org/leisure) is a regular newsletter that gives information about leisure opportunities for people with a learning disability. There are other organisations, such as those covering specific caring groups, that also distribute newsletters and other mailings which will inform you about activities; see Information for details.
You can reduce the cost of leisure activities by ensuring that you make the most of any discounts. Carers, older people and people with disabilities can often get reductions on entrance fees to major tourist attractions and places of interest so it is always worth asking when you buy your tickets. Many attractions have a carer goes free policy, but the person with the disability may need to show proof of their disability, such as a Disabled Person’s Freedom Pass (see Transport) or details of their Disability Living Allowance (see Money Matters).
If accessibility is one of your main concerns when planning leisure activities, there are a number of sources of information. The DisabledGo website (www.disabledgo.info) lists the accessibility of leisure and entertainment venues in Croydon, including pubs, restaurants, cinemas and shops. As well as finding out about wheelchair access you can check other facilities such as toilets and changing areas, large print, hearing systems and parking. The Community Access Service (020 8726 6000 ext 61661) helps adults under 65 with a physical disability and/or sensory impairment to access leisure opportunities (in addition to learning and job opportunities). Croydon Council has an Inclusion Support Worker (020 8604 7570) who can help if you are a parent carer and have difficulty accessing an out of school club because of your child’s extra needs.
You can get information on the accessibility of venues and attractions across London, plus details of prices and concessions, from Artsline (www.artsline.org.uk). Shape (0845 521 3457, www.shapearts.org.uk) helps deaf and disabled adults to access arts and entertainment events across London and provides information on the accessibility of venues.
If going out of the home is not possible for the person you care for, Croydon libraries (020 8726 6900) offer specific services for people who are housebound or have a visual impairment, such as the home library service which delivers books to your door every four weeks, and a wide selection of large print, Braille and talking books. W4B - the TV and Radio Charity (01708 621 101, www.w4b.org.uk) aims to prevent feelings of isolation and loneliness by ensuring that those with issues associated with age, illness and disability who find it difficult to leave their homes can benefit from a free television, cd player or radio. Applications must be made by a referee, such as a carers support organisation, health or social services professional.
There are specific leisure activities and schemes that you and the person that you look after may want to explore - whether you want to do things together, or separately, which will give you a break at the same time. We have listed a range of schemes for a variety of groups of people, but there are many more that are available, so please contact us if you cannot find what you need.
You may find our annual publication Summer Guide for Parent Carers, which is published in July, helpful if you are looking for holiday activities and ideas suitable for children and young people with a disability or illness. You can also find out about childcare, children’s centres and other activities for children by calling the Family Information Service (0845 1111 100, www.croydonchildcare.com).
You may decide to go on holiday without the person you care for and find alternative care for them or you might prefer to go on holiday together, but look for a venue where help is provided. See our factsheet Holidays for sources of information and advice, travel insurance, medication, equipment, holiday providers and financial help.